Wednesday, May 2, 2012

Yabba Dabba Doooooooooooooooooooooooo

yes, you can picture dad sliding down a brontosaurus tail, jumping in his car, and going home!!!!

actually, he will be carefully getting into my car, which is higher off the ground than my mom's car, and i will be driving him home, yes, HOME!

friday, may 4, 2012.

140 days in hospitals. welcome home dad, you are a total champion!




this blog is officially closed! feel free to get in touch directly with the man himself from now on.

Wednesday, March 21, 2012

hey out there! sorry!!

sorry for the grievous delay in updating this blog, i am really sorry, not just saying that...i have had stuff to report...moves, surgeries (well, singular surgery)...but just haven't taken the time to do it. i could beg off on one week, i guess, having been hospitalized for six days myself in february, but hey...this blog isn't about me!
but it is about how chuck is doing, so here it is!

he is currently back at medical center of plano, where dr. sanders, the orthopedic trauma surgeon, just did another surgery on his pelvis. it went well, and he didn't have to install any plates, which he thought he may need to. the ultimate goal is a total hip replacement, which he feels he will be able to do in about two weeks, maybe three. in the meantime, the hope is that he will go back to remington, which is where he was before this surgery. then, finally, back to the hospital for the hip replacement, and ultimately back to remington for rehab until he can go home.

did you get all of that? do you have whiplash? yeah, i feel ya.

emotionally and mentally (and dad, i know you will read this, so i will be gentle), i think that my dad is experiencing a kind of institutionalization. in the mental health field, we usually use this term to describe a person who has been in an institution (prison, hospital, whatever...i will extend it to the military as well, and will argue happily...albeit elsewhere...with anyone that takes exception to that) for so long that when they are back in "the free world" they have problems functioning in it, since the structure and rules of wherever they have been have sort of become internalized, and no longer facilitate appropriate social behavior. now, my dad hasn't been discharged or released, as it were, as we all know. but he has been in an inpatient facility for so long (over three months now) that his perception of reality has been affected by it. in my simplest opinion, he has (understandably) lost some of the perspective that he needs to regulate his thoughts...he has forgotten (given up on? not been able to connect to the feeling of? not sure exactly...) that there is a life for him outside of his life in that goddamned bed. i hope i am making sense...he is oriented, he isn't confused like he was a month or two ago...but he is overly focused on the grind of his daily life (getting an IV, being woken up when the staff need to wake him vs. when he wants to wake up, ordering all his food from a one page menu, etc, etc) and it isn't healthy. he is (sorry to use another clinical term) capitulating to his injury/illness. in the psychology of rehabilitation, this trait tends to be one of the least successful in regards to prognosis. so, i am worried about him. yes, i am worried about you, dad. you need to draw down deep and fight, not lay in bed and yell at nurses for hurting you when they need to change your IV. i understand your frustration, and i am trying here to help others understand it too, so that they can support you in meaningful ways. ok? ok.
so in a rather large nutshell, when you go visit, or call, or send cards, or whatever...don't let him complain to you about the food. tell him if he wants better food to get busy and be aggressive with his therapies and get home. home is where the rest and good food and comfort are. he isn't (you aren't) supposed to be comfortable now, he (you) are supposed to be rehabilitating. he (you) can rest and recover when you get home, dad. but you aren't going to get there until you focus on the goal, dig down, and fight like the strong, determined person we all know you are, and need to be now.

i love you, and want you out of bed, out of hospitals, rehabs and most of all, nursing homes. i want you home. but you need to fight to get there. it is going to hurt, it is supposed to hurt, but it will be worth it. i also love everybody that comes to see you and calls you for helping you get through this. if you are one of those people, thank you from the bottom of our hearts. our family is grateful to you.

if you want to visit, that is great. i would call first so you don't miss him or interrupt therapy, he has his phone there. you can also send him email through the hospital website, which they deliver daily. or you can facebook, or text me. as usual, best to leave mom alone, she is up to her eyeballs. i PROMISE to update this as soon as he moves again. please don't stop sending cards, etc...or calling. you can always mail cards to the home address, mom will bring the mail to him...text me if you want that address.

thanks again from all of us. :)

namaste...
christene xoxoxox

Thursday, February 16, 2012

HELLO EVERYONE!!!

I guess I will just start every post now with an apology regarding not having posted recently...and I am sorry! In some cases, it is a "no news is good news" situation...for the most part, Dad is stable, and slowly but surely recouperating. Let me back up here, and fill everybody in...
I think that I wrote about Dad moving from Plano Specialty Hospital to Reliant Rehabilitation. But, on second thought, maybe I didn't. Anyway, Dad moved from PSH to RR...PSH was a long term acute care facility, and he was really pretty bored there, as those of you who went to see him can attest to. And by bored I mean at times completely delirious and disoriented. It was partially the pain meds, partially the move, and partially the lack of stimulation, but when he started insisting that Bob Dylan was talking to him from a helium balloon that a friend had brought him, we knew we had to get him busy. There was some therapy, but not as much as there would be in a rehab, and while he battled a lot of pain there when he started the PT, he made great progress and was shortly sitting up in a wheelchair for a few hours at a time. Since the pain is focused in his pelvis (remember...shattered and reconstructed) and his ribs (just broken and slowly healing) this sitting up was a big deal! As a result, his doctors felt that he met criteria for inpatient rehab. We were all really happy about that, because we knew on a rehab unit he would be more engaged, less discouraged, and working harder on getting home at last. And hopefully less disoriented and confused, because all joking aside, it kept me up at night wondering and worrying if he was just losing his marbles, and if my dad, the man we all know, was just slipping away forever because of all of the trauma. I am happy to say right now that this is not the case. But I digress...
We moved Dad to Reliant Rehab and within a day or two he came down with a terrible infection that completely wiped him out. His potassium is all messed up, he is dehydrated and weak and deconditioned. Now the fun part is that because he can not tolerate three hours of therapy at this time, he no longer meets criteria for Reliant, and has to be moved...again. To the dreaded "skilled nursing facility"...a nursing home. My mom and I were ready to head downtown and pick the highest mix master, or maybe the Trinity River Bridge, and just make a Thelma and Louise type exit. A nursing home? You all know my dad. Can you see him in a nursing home? We were really upset, worried and panicky that night. This was Tuesday night, I believe. Yes. So, we had the name from his case manager of a skilled nursing facility that "didn't look like a nursing home", and so we went yesterday to check it out.
Wowza, he wasn't kidding. Mom and I managed to find the absolute Rolls Royce of facilities for dad to be in, from the skilled nursing level he needs right now, all the way through to the rehab he will get back to as soon as he is physically able, until he is able to come home. The place is called a "medical resort" and let me tell you, if it is half, and I do mean half, as nice as it seems to be, it is the perfect place for dad to get better. He is scheduled to transfer today, and once he is settled and has a room and a phone number, I will post it along with the address.
Before I sign off, I have to say that I cannot stress enough that getting cards and things in the mail is a huge highlight of his day. If you have sent a card or a photo or flowers, my heart is eternally grateful to you. These things cheer him immensely! And of course, the phone calls are great. He has been really tired and wiped out lately, but you know dad, he needs to stay connected. So keep it up, I love every single one of you that reads this and is still thinking about and/or praying for my dad. Keep my mom in those thoughts and prayers, too, if you don't mind. This has been absolute hell for her. She did go back to work part time a couple of weeks ago, and that is good for her, but emotionally she is still a bit frail. Who wouldn't be?
Absolutely WILL update once this (hopefully!) final move is done.

Namaste.

Christene

Monday, January 30, 2012

january 30

hello to all who are still checking in!
dad is stable, still in the long term acute care hospital, in plano. don't let the website fool you, it is a dismal place and dad is working hard on his therapy so that he can be transferred to the inpatient rehab hospital. we have pretty much decided will be reliant, also in plano. he has to be able to tolerate three hours of therapy a day to meet criteria. he is using up his hospital days and we are, quite frankly, a little worried that if he doesn't meet those criteria soon, the only option (other than taking him home, which will really reverse the progress he has made) will be a nursing home, which we all agree is completely and totally out of the question. OUT OF THE QUESTION.
so here is what we need from you...call, visit, send cards, whatever...but please help us encourage him to PUSH through the pain, which of course is considerable, so that he can move along in his therapy and be able to go to rehab soon. i really do think it is possible, his progress has been tremendous, considering that six weeks ago we weren't even sure he was going to make it. he sits in up in a wheelchair for several hours a day, he is even "standing", that is, assisted by the parallel bars and the physical therapists, but still, standing upright for 5-10 seconds at a time. this helps his breathing and his intestinal ileus so much! so, cheer him on in any way you can.
thanks for hanging in there with us.

namaste.

christene

Monday, January 16, 2012

january 16

so sorry for the long delay...for a few days there we didn't have that much to report, we were just watching and waiting. well, the wait was good...dad has been transferred from medical center of plano to plano specialty hospital, which is a long term, acute care facility that will serve as a bridge between the regular hospital and the inpatient rehab. i think we have chosen that as well, but will visit this week to be sure. PSH is small, and the people are mostly nice, although it is clearly NOT a hospital and some of the staff needed a reality check from carmella about the standard of care that she expected, *ahem*, just be glad you weren't the nurse that didn't check his bowel sounds or take his temperature, alright? alright. as nobody will be surprised to learn, she seems to have sorted them out and they are mostly on their game now. *ahem* we are waiting for a room change, so i won't post the room number. if you want to visit, call dad or text me first, since we have them focusing on getting his strength back and he does a lot of therapy sessions throughout the day. he hates it, and would rather visit, trust me. but he can't go to rehab until he is able to tolerate three hours of rehab a day, and he isn't there yet. please, when you do call or visit, remind him to work hard, try and be positive and encouraging, since he is still in a lot of pain and this rehab is such hard work, it absolutely exhausts him. keep the thoughts and prayers coming, too...i have to add that his kidney, the one that had the huge hematoma on it that wasn't functioning at all...is functioning perfectly. so the nine lives of our hero continues! love you all and will update with more frequency as things move forward.

namaste,
christene

Sunday, January 8, 2012

Sorry! Sunday the 8th

I have only been to the hospital twice lately but I can briefly let you all know that dad did end up with a bowel ileus, so he is back to a liquid diet and they are working on fixing that. He is getting stronger though and you can certainly give him a call if you like! He is still in room 619. More tomorrow after I go over myself, I promise! Getting back to work and getting Vincent back into his school routine has taken up a lot of my time but I won't stop updating. Love to all who are still reading,
Christene

Thursday, January 5, 2012

OUT OF ICU!!!

dad is out of ICU! best part, for him at least, is that he has a phone and can get calls!

still not a great time for visitors due to infections, and honestly i am not sure what the visiting hours are on the telemetry unit, but here is the main number to the hospital...972-596-6800, and he is in room 619.

so, give him a call, and if he doesn't answer, just assume he is in therapy or resting. more updates later.

love, christene